Steps to Collaborate

The ALIVE study is committed to conducting high-level research that conforms to the highest ethical standards while ensuring the confidentiality and privacy of our participants. Staff, students and investigators that work as part of  the ALIVE study team are required to follow the all Johns Hopkins policies regarding human subjects research.

Human Subjects Research Training

Human Subjects Research Training provides an overview of the ethical framework and regulatory aspects involved in conducting human subjects research.

Please click here for more information on Human Subjects Research Training at Johns Hopkins.

HIPAA Certification

The Health Insurance Portability and Accountability Act (HIPAA) was enacted in 1996 to ensure the privacy and protection of personal health information. HIPAA set boundaries on the use and release of health records, and determined necessary safeguards for health care providers and others to use in order to protect the privacy of health information.

Please click here for more information on HIPAA compliance and certification at Johns Hopkins.

Requests for Data or Repository Samples

Linked below are the forms required for collaboration. After completion of the forms, please email them to the principal investigators for review.

• ALIVE substudy request form
• ALIVE reimbursement form
• ALIVE project agreement form