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Barbara
Biesecker
,
PhD

Associate Professor

Departmental Affiliations

Contact Info

National Human Genome Research Institute, 31 Center Drive, MSC 2073
Bethesda
Maryland
20892
US        
301-496-7157

Research Interests

  • Health Policy and Management
  • Genetic Counseling
  • Graduate program in genetic counseling
Experiences & Accomplishments
Education
MS
University of Michigan
1981
PhD
King's College
2011
Overview

Research interests include understanding the reasons for use of new genetic tests that predict risk and implications of the results; quality of life for those living with different genetic conditions; adaptation to a genetic condition; the process and outcomes of genetic counseling and informed consent for prenatal tests.

Select Publications
  • Gollust S, Thompson R, Gooding H, Biesecker, B: Living with Achondroplasia in an Average-sized World: An Assessment of Quality of Life. Am J Med Genet (accepted).

  • Gooding HC, Boehm K, Thompson R, Hadley D, Francomano C, Biesecker B: Issues Surrounding Prenatal Diagnosis for Achondroplasia. Prenatal Diag (in press).

  • Peters KA, Kong F, Hanslo M, Biesecker, B: Living with Marfan Syndrome III: Quality of Life and Reproductive Planning. Clin Genet 62:110-120, 2002.

  • Redlinger-Grosse K, Bernhardt B, Berg K, Muenke M, Biesecker B: The Decision to Continue: The Experiences and Needs of Parents who Receive a Prenatal Diagnosis of Holoprosencephaly. Am J Med Genet, Sept., 2002.

  • Gooding H, Wilfond B, Boehm K, Biesecker B: Unintended messages; the ethics of teaching genetic dilemmas. Hastings Cntr Rpt, March-April:37-39, 2002 .